I woke up with a stomach ache. I recall thinking about the burger and fries I had the night before. Yep, that was all it was. Now, 5:15 am…stomach still hurts. I started to walk around and pace the Hospital Room. Hmm…maybe this isn’t a stomach ache. As 8 am rolls around, I finally paged […]

The Case of the Missing Left Foot

Now that Lennon is 11 months old (I still can’t believe it) we are in the process of getting her set-up with her first prosthetic. Neither one of us has ever had to deal with anything related to this. So, of course, we have no idea what to expect. We have been fortunate in two […]

A Typical Day

I know from personal experience it can be confusing to know what’s normal for a child being tube fed and what’s not. Before I dive into what a typical daily diet looks like for Lennon – let me say this – there is no NORMAL. The thing to pay attention to is how your baby […]

Clean up, Aisle 4

“Yes, sorry.”  “Yep, that smell is coming from me.” It’s such a distinct smell. The smell of baby formula. I promise I wash my clothes.  “Excuse our mess.” “Watch out!” “Seriously, be careful there is about 4 ounces of spit up on the floor” “No, I didn’t spill it. No, she didn’t do it on […]

Things We’ve Tried…

Here are the list of things we’ve added to her elecare formula to try and get her to drink: Hershey Chocolate syrup Jello powder (varies flavors) Various Purees (apples, pears, bananas, etc…) Oatmeal  Rice cereal  Kefir Yogurt  Chocolate Nesquick Powder  (no sugar added) Naked smoothies  Ripple Chocolate Milk  Neocate  All of these items I’ve tried different combinations of. […]

The G-Tube Decision

One of the hardest decisions we had to make was whether to get the G-tube put in. We felt strongly that the G-tube was not an option. She would start eating. She would. She had to. Right? If I’ve learned nothing, I’ve learned I know nothing. Ha. Seriously, though our breaking point was Lennon pulling out […]

My Tube Fed Baby

When Lennon came home we were under the impression her eating would just ‘click’. Well, I can tell you 10 months later, it’s simply not the case. You can have people empathize, sympathize and try to help. The reality is  – like anything – no can understand unless they’ve gone through it. I’ve been fortunate […]